Anni's Story

We are special needs parents.

We do our best to navigate appointments with specialists, the world of IEPs, medical equipment, adapting our home, our work life, and social life to meet the needs of our children.

We wanted to share more about Anni’s specific diagnosis, what it is (what, you’d never heard of mucopolysaccharidosis? Neither had we…), and how we have committed to giving her the best life possible.